Publications

Gastroesophageal Reflux Disease (GERD) Booklet

Booklet to help people better understand GERD, to recognize possible symptoms of GERD, and to obtain proper treatment for GERD. This is a common health care condition affecting people with IDD.

Genetic Testing Brochure

The PCHC Genetic Testing Brochure provides the reader with a brief overview of the purpose and process of genetic testing and the benefits of genetic testing regarding identifying medical and behavioral risk factors. This testing is often recommended for people with ID. Brief overviews of Angelman's, Fragile X and Prader-Willi Syndromes are provided within the brochure as well as where to find additional resources and information regarding genetic testing.

General Guidelines for Nurses in Community Residential Programs Supporting People with Intellectual Disabilities Booklet

The guidelines in this booklet are a compilation of potential nursing involvement in the health care of people with ID. The guidelines should not be construed as a list of required activities to be performed by nurses working in small community homes since it would be relatively impossible for anyone to be responsible for all facets of the activities described.

Management of Pain for people with an Intellectual Disability (ID) & Other Developmental Disabilities

Booklet used as a tool to help providers, family members, caregivers and individuals understand pain management for people with ID and other disabilities.

Feeding Tube Resource Packet

Resources and documents helpful in support of people with an Intellectual Disability (ID) that can be adapted to meet your personal needs.

Project description of the Feeding Tube Resource Packet.

Download the Feeding Tube Resource Packet

Fatal Five Resource List

In a continued effort to support the identified Fatal Five medical conditions, PCHC created a helpful handout with a list of online resources to support these conditions. Feel free to download and use them for training, reference, or support for a person identified with or at-risk for these conditions.

HIRS (Health Information Recording System)

A medical record keeping system designed to meet the needs of individuals, caregivers and health care professionals within the ID system. The entire document can be downloaded here.

All individual HIRS forms can be downloaded from the Forms web page under the Health Information Recording System (HIRS) tab.

Project description of the HIRS.

Download the HIRS (Health Information Recording System)

Dysphagia Booklet

A guide for those providing support in residential settings to individuals with an intellectual disability (ID) and/or autism. It provides an overview of dysphagia, its warning signs, and steps that can be taken to obtain a dysphagia diagnosis and individualized plan of care.

The project description of the dysphagia guide.

Download the Dysphagia Booklet

Diabetes Booklet

The Diabetes Guide provides individuals, families and support staff with useful information about diabetes and tools to support an individual living with diabetes. Some highlights from the guide include:
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How to Access Services
Managed Care information
Available Services provided by County Behavioral Health-Managed Care Organizations
Crisis Center Hotline Information

Hospital Admission and Discharge Planning Booklet

The information in this booklet is provided as a tool to assist anyone dealing with hospitalizations or facing extended medical care. Some of the topics include:planning for hospital admission, roles and responsibilities of hospital staff and team members, preparing for discharge home or transferring to another health care facility and documentation. Funding was provided by Pennsylvania LINK to Aging and Disability Resources, June 2015.

Download the Hospital Admission and Discharge Planning Booklet

Dysphagia Resource Directory

A directory developed by the Southeast Region Dysphagia Summit Task Force Committee designed to be a resource guide to helpmeet the needs of individuals with an intellectual disability (ID) and/or autism. It contains a number of resources on dysphagia and swallowing problems including the Eating, Drinking and Swallowing Checklist, the Meal Profile, and guidelines for writing a dysphagia policy.

A project description of the Dysphagia Resource Directory.

Download the Dysphagia Resource Directory

Nurses Survey Report

Report on a survey of nurses working in small community residential homes providing health care support for people with ID in the Southeastern Region of Pennsylvania.

See the project description of the Nurses Survey Report.

Download the Nurses Survey Report

ODP Resource Guide for Supporting Deaf, DeafBlind, and Hard of Hearing Individuals

The purpose of this guide is to offer resources in one central location for those who support
or care for someone who is Deaf, Hard of Hearing, or DeafBlind and receives supports from the Office of Developmental Programs (ODP). Development of this guide included input from individuals within the Deaf, DeafBlind, hard of hearing, and hearing communities.

Download the ODP Resource Guide

Download the ODP Resource Guide for Supporting Deaf, DeafBlind, and Hard of Hearing Individuals

Nursing Home Panel Review Brochure

The purpose of the Nursing Home Review Panel is to review each Philadelphia Pennhurst or Embreevìlle class member who may need a skilled nursing or rehabilitation facility. The Nursing Home Review Panel must be informed of admission to a nursing home or rehabilitation facility in order to monitor progress to ensure quality and discharge.

The Hospital Admission Follow Up Form needs to be submitted to the Nursing Home Review Panel whenever a Pennhurst or Embreeville class member, registered in Philadelphia, is admitted to a hospital. This form needs to be resubmitted anytime there is a change in the placement of the class member who has been hospitalized. The Hospital Admission Follow Up Form is submitted by the Supports Coordinator assigned to the class member.

Download the Nursing Home Panel Review Brochure

Enhanced Resource Network Meeting

A brochure that provides an overview of the Enhanced Member Supports Unit, how to access its services, and the importance of attending PCHC's quarterly Enhanced Resource Network meetings.

Sexual Abuse Awareness and Resources Brochure

This brochure outlines critical issues regarding sexual abuse awareness related to people with ID. This brochure answers questions including: What are the risk factors? What should you look for? How can you help? It provides guidance on what you should do if you suspect or witness sexual abuse and provides information on organizations who can help.

Training Topic List

This is a catalog of trainings offered by PCHC. You can schedule any of our trainings by filling out the Training Request Form. If you have questions or would like to inquire about other topics that are not listed, please call the Education Department at 215-546-0300 ext. 3315

Download the Training Topic List

Philadelphia Coordinated Health Care (PCHC) is a unique and innovative program designed to provide health care support to individuals with intellectual/developmental disabilities and/or autism (IDD and/or Autism) living in the community in Philadelphia and Southeastern region of Pennsylvania.